Sunday, November 9, 2008

On the road again

I don't know if any of you have tried to set up appointments with medical specialists, school enrollment, and living arrangements from about 5000 miles away. Even with the wonders of technology - the Internet and VoIP telephones, it's not an easy thing! But let me back up a bit...

Here's a reader's digest version that will bring you up to date. In May '07, Danna was diagnosed with nephrotic syndrome. Up until this last month, her course of medication has kept the syndrome in check, and we've had a "normal" year here in Prague - exploring castles, traveling around Europe, and starting Kindergarten. Well... that's all about to change a bit. Danna recently stopped responding quite as well to her initial medication, and her doctors here have recommended that she move to the next commonly recommended treatment. Unfortunately, the Medical experts at the US State Department (Kevin's employer) don't believe that this treatment should be done here in Prague, and have set up a "medivac" for Danna for further evaluation and treatment in the US - treatment that could take up to three months or longer.

We've now adjusted to the reality of this "exile" from Prague, and have gotten busy the last couple of days! Trying to arrange plane tickets, funding & approval for those tickets, a school for Jad, and most importantly of all, trying to set up Danna's appointment with a specialist... all from 6-9 timezones away! (What did we ever do before the Internet?)

The latest in our ever changing lineup sounds something like this: we have an appointment set up with a specialist in Dallas, just a couple hours down the freeway from "home base" in Oklahoma City. We have a planned flight out from Prague this Thursday. Kyler's just started exploring the limits of his "climbing" ability, so the cross-Atlantic flight should be "fun". We've contacted a school close to Erin's parents' house in OKC, and it looks like Jad should be able to slide in to American kingergarten next week.

One "fly" in all this this ointment? Kevin "gets to" stay put here in Prague while the rest of the family flies of the the US. He's planning to join them for Christmas... But being a "geographical bachelor" is not that much fun. At least he'll get Jad's legos all to himself for a while, and won't have to share his "Asterix and Obelix" books!

The kids are thrilled at the prospect of this "adventure". They established pretty strong roots in Oklahoma during our home leave before arriving in Prague, and have been regailing us with stories of all the friends and family they're going to see, things they're going to do, and places they're going to visit. Of course, the aforementioned friends and family in Oklahoma are pretty happy about spending some time with the family as well!

By the way... though Danna has a Kidney condition, she's really not "sick" in the common sense of the word. Though she knows her "kidneys don't wook so well", that's a little less important to her at the moment than her collection of Princess dresses, or the schedule of Saturday morning cartoons! Her course of medications so far keep her happy, healthy, energetic, and full of beans (she has an opinion about everything, of course). The treatment that will most likely be recommended when she sees the specialist next week is the normal course of treatment for kids with her condition... A condition which is most often outgrown as the kids head toward the teenage years and beyond.

OK - more as we know it! We'd appreciate your prayers!


Stephanie said...

i am SO sorry to hear this, guys!! i will be praying for sweet danna and for you all as you begin this new adventure.

sending hugs from oregon....

steph for doug and evelyn, too! :)

Heather Witherow said...

Hi Kevin and Erin,
You may or may not remember us from Sunset Pres... we're John and Heather Witherow. Anyway, we live in South Africa now with our three boys. Our youngest, Caleb, was born with a birth defect called hemangiomas. Any way, he's had six surgeries (all laser and plastic) to deal with the fast growing benign tumor-like growths. All that to say, when we had only been in South Africa a year, Caleb's doctor informed us that we needed to bring him back for another surgery. We had to get it all together in a short period of time; all through skype and such.

Our situation is different, but the Lord was faithful in every single step and paved a way; inspite of the tremendous challenges of time, communication, space, etc.

May the Lord care for your every need during this time.

John and Heather Witherow